I am not updating these posts that often now, which is good, because it means there is no significant news. Since my last post, I had a Bone Marrow Biopsy and the results are in….drum roll…nothing changed. Well I shouldn’t say nothing. Everything is going as expected is a better description. The doctor see that my cells are all “donor cells”, and no abnormalities are showing. At this point, with my blood counts pretty much back to normal and not changing (in a bad direction) month to month, we should not see any bad things in the bone marrow. So another biopsy in a year, or if we have some radical change in blood numbers, or maybe never again!
My liver numbers are still high, but not that high, and really only the ALT is high. So the past few months we have been reducing some medication, and those liver numbers are staying the same. So that is all good. I am down to 2.5mg of Predinose a day which is no problem to handle. We are just following the long protocol to ween me off the other medications. And, yes the goal is to someday be off of all medication. That is different than an organ transplant where you have to take anti rejection drugs rest of your life. For those of you super interested in the medication I take, check out the More Information page.
I guess the biggest news I got from doctor’s office is Siteman Center is finally going to have all their medical records online for their patients to see. They are a little behind the times compared to other hospitals in the area. Maybe they need some help in their Information Systems department…..hmmmmmm 😉
That’s it for now, I probably will only post one more time around the end of year. 🙂