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This is a health blog by Jim Schmitz for sharing my progress after a diagnosis in August 2010 of a Myelodysplastic Syndrome (MDS) called Refractory Anemia with Excess Blasts

Final diagnosis: RAEB-1 with rare t(6;9)(q23;q34) chromosome translocation resulting in DEK-NUP214 rearrangement.  Blasts were never more than 8%. There was a high probability of this aggressively transforming to Acute Myelogenous Leukemia (AML) without treatment.

Karyotype:  46,XY,t(6;9)(q23,q34)[4]/46,XY[16],nuc.ish(EGR1,D7S486,D8Z2,ETO,MLL,PML,CBFB,RARA,AML1)x2[200]

My stem cell transplant was on September 30, 2010 at age 45 with my older brother as a full match. It was a full myeloablative conditioning regimen with chemotherapy but no radiation.

I know a lot of people with MDS may end up looking at this site after being directed here from an internet search, so on this About page I will periodically post my current health and medication status for quick reference.

I am being treated by Dr. Keith Stockerl-Goldstein at the Siteman Cancer Center in Saint Louis, Missouri. I live only five miles from one of the top cancer centers in the United States which made organizing the whole transplant process much easier. Most transplant patients have to arrange weeks of lodging near their centers for a couple months after discharge.  I highly recommend my doctor and the Siteman Center if you are considering treatment options.

Contact Jim on Facebook or via email

Transplant Date:  September 30, 2010

Here are some sites I have found helpful:

Thanks for reading!

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5 responses

  1. Hi Jim,
    I’ve been thinking of and praying for you every day. What a great blog, I check it daily for updates. Thanks for creating it! Keep your chin up and be sure to follow the doc’s orders. You’ll be back to normal before you know it. Best wishes for a speedy and full recovery.

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  4. Hi Jim,

    Thanks for all the great information. I follow your progress closely as I followed close on your heels with my transplant on 11/30/10. I’m curious about your liver enzyme numbers since I didn’t see them posted here. What are your alkaline phosphatase, AST, and ALP values? Mine have all run a little high but thankfully not enough to medicate thus far. It sounds like your doing well! Congratulations on the natural dye job on your hair. Mine has come in very sparsely, not even enough to cover my scalp.

    Best wishes!

    Karen

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