Final diagnosis: RAEB-1 with rare t(6;9)(q23;q34) chromosome translocation resulting in DEK-NUP214 rearrangement. Blasts were never more than 8%. There was a high probability of this aggressively transforming to Acute Myelogenous Leukemia (AML) without treatment.
My stem cell transplant was on September 30, 2010 at age 45 with my older brother as a full match. It was a full myeloablative conditioning regimen with chemotherapy but no radiation.
I know a lot of people with MDS may end up looking at this site after being directed here from an internet search, so on this About page I will periodically post my current health and medication status for quick reference.
I am being treated by Dr. Keith Stockerl-Goldstein at the Siteman Cancer Center in Saint Louis, Missouri. I live only five miles from one of the top cancer centers in the United States which made organizing the whole transplant process much easier. Most transplant patients have to arrange weeks of lodging near their centers for a couple months after discharge. I highly recommend my doctor and the Siteman Center if you are considering treatment options.
Transplant Date: September 30, 2010
Here are some sites I have found helpful:
Thanks for reading!